Blake's eye appt. went pretty well. She found no major problems, although did see some mild peripheral (cortical) cataracts. They are not interfering with his vision at this point, so we will recheck again in 6 months to see if they are progressing.
In children they are usually the result of eye trauma or congenital. I have also heard that cataracts are fairly common with genetic syndromes, although not enough is known about PTLS at this point to determine if they are related to his condition or not.
The good news is IF they progress as he gets older there are a couple different options he has as far as surgery goes. Cataract surgery is one of the most commonly performed surgeries and has a very high success rate. So we will keep an eye on it (no pun intended) and pray that it doesn't give him any problems.
Overall all he handled the exam like a champ, from the stinging eye drops to holding still for the doctor, and got some very cool sunglasses to wear home.
Thursday, January 22, 2009
Thursday, January 15, 2009
As you may have noticed I have been MIA for quite some time. We have been SO busy with the holidays and school parties and a couple of strange maladies that I hope to never deal with again. BUT now everyone is healthy and things are finally back to normal after the stress of the last couple months.
All of the kids are doing well. Tyler got a great report from his kindergarten teacher; doing well academically, is well-behaved and kind to others. Savannah is enjoying pre-school, up and dressed and in a hurry to get there every day. She was actually upset when they had to go on Christmas break! Paige I am especially proud of this year. She is doing amazingly well in 6th grade, getting all A's and B's (even in science & math, where we had to work to get a C). She is in band and choir and enjoys both. I have gotten some very positive feedback from her teacher regarding her writing skills. She has a great talent in that area, and also in art. I am really surprised at that one considering the fact that I don't have an artistic bone in my body, but she is REALLY good. She drew some cartoonish animals recently that were so good I was convinced she had traced them. I actually had her draw another while I watched, and sure enough she did it just by looking at a picture in a book. I had never considered art as a career for her but she just may have a future in it.
That brings us to Blakie. That little guy is doing so well. A while back he started using the word 'mama' in a functional way-he would always say it, but not to communicate with me. He was eating one day and I was reading, and he said "mama". I looked and he signed to me that he was all done. He actually used the word to get my attention so he could tell me something! I couldn't believe it. He has since been using it on a regular basis to tell me things. He also says 'yeah' all the time (even when he shouldn't, but he says it so enthusiastically that it's adorable), and FINALLY started saying 'dada', which I think melted Nick's heart when he heard it. He says other things like doggie, what's that, bye bye, etc. Some are more clear than others but since we are always with him we can understand. He even got a note sent home from the speech therapist today saying how pleased she was with his vocalizing, and that he was imitating more words than he used to. That was so nice to hear. Speech is his biggest obstacle and we have waited a long time for him to make progress in that area.
He also had a check up last week and that was also great news. He has jumped to the 50th percentile for height and is almost at the 50th for weight. I'm positive this growth spurt can be attributed to his gains in the feeding area. He is eating basically anything that isn't really hard or crunchy, and still has trouble with bread and meat, but that will come. He has learned to jump with both feet off the ground, run, and will try to do anything his older siblings do. He has his opthamology appt on Jan. 20 to check for any eye conditions related to the PTLS. I am hopeful that this will come back normal like all the other tests we have had so far.
I think that is pretty much it. I am VERY blessed to have such amazing kids, and their dad who they adore and who adores them. I will try to find the time to post updates more often, and will definitely post the results of the optho exam.
I hope everyone has a great new year. I certainly am looking forward to the progress that will be made this year.
All of the kids are doing well. Tyler got a great report from his kindergarten teacher; doing well academically, is well-behaved and kind to others. Savannah is enjoying pre-school, up and dressed and in a hurry to get there every day. She was actually upset when they had to go on Christmas break! Paige I am especially proud of this year. She is doing amazingly well in 6th grade, getting all A's and B's (even in science & math, where we had to work to get a C). She is in band and choir and enjoys both. I have gotten some very positive feedback from her teacher regarding her writing skills. She has a great talent in that area, and also in art. I am really surprised at that one considering the fact that I don't have an artistic bone in my body, but she is REALLY good. She drew some cartoonish animals recently that were so good I was convinced she had traced them. I actually had her draw another while I watched, and sure enough she did it just by looking at a picture in a book. I had never considered art as a career for her but she just may have a future in it.
That brings us to Blakie. That little guy is doing so well. A while back he started using the word 'mama' in a functional way-he would always say it, but not to communicate with me. He was eating one day and I was reading, and he said "mama". I looked and he signed to me that he was all done. He actually used the word to get my attention so he could tell me something! I couldn't believe it. He has since been using it on a regular basis to tell me things. He also says 'yeah' all the time (even when he shouldn't, but he says it so enthusiastically that it's adorable), and FINALLY started saying 'dada', which I think melted Nick's heart when he heard it. He says other things like doggie, what's that, bye bye, etc. Some are more clear than others but since we are always with him we can understand. He even got a note sent home from the speech therapist today saying how pleased she was with his vocalizing, and that he was imitating more words than he used to. That was so nice to hear. Speech is his biggest obstacle and we have waited a long time for him to make progress in that area.
He also had a check up last week and that was also great news. He has jumped to the 50th percentile for height and is almost at the 50th for weight. I'm positive this growth spurt can be attributed to his gains in the feeding area. He is eating basically anything that isn't really hard or crunchy, and still has trouble with bread and meat, but that will come. He has learned to jump with both feet off the ground, run, and will try to do anything his older siblings do. He has his opthamology appt on Jan. 20 to check for any eye conditions related to the PTLS. I am hopeful that this will come back normal like all the other tests we have had so far.
I think that is pretty much it. I am VERY blessed to have such amazing kids, and their dad who they adore and who adores them. I will try to find the time to post updates more often, and will definitely post the results of the optho exam.
I hope everyone has a great new year. I certainly am looking forward to the progress that will be made this year.
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