Tuesday, September 21, 2010
Monday, September 20, 2010
Blake had his second heart study last week. It went much better this time. He was such a big boy and was very cooperative, laying so still he almost fell asleep during the echo. The 1st one we had done (when he was 2) was horrible--he screamed the whole time and I had to hold him down for the whole thing.
Everything looks good so far-he has a stills murmur, which is fairly common (up to 30% of kids have one, including my TD son) and has nothing to do with ptls. The cardiologist said that if the aortic root were to dilate it most likely would happen between 8-13 years of age, which makes sense because that is when they hit their growth spurt. So we will check back in 3 years.
He also has started at a new preschool because we moved in to a different school district, and due to ECSE rules we can not bring him to an out-of-district school. I was pretty upset about that one. I loved his last school and teachers and thought they had a great program. I was really worried that he would be expecting to see the same faces and the same building from last year and was going to be totally confused and scared by the change.
He was a little unsure his first day, but when i picked him up he had a big smile and when I asked if he had fun he said "yeah!" His teacher is very nice and has 22 years of experience, plus her background is in speech pathology so her program is very language focused. With his biggest challenge being the speech delay i think this will be a huge benefit for him. Also the co-teacher specializes in ASD (autism spectrum disorders); a large percentage of ptls kids end up somewhere on the autism spectrum, so if this is the case for Blake we will have someone with him daily who is very knowledgeable in that area, too.
The Jenison school district has a reputation for their great special education program, and i have heard nothing but good things so i hope that it will work out...I still wish we could have kept him at his old school but I guess all that matters is that he is happy and getting whatever help he needs.
Everything looks good so far-he has a stills murmur, which is fairly common (up to 30% of kids have one, including my TD son) and has nothing to do with ptls. The cardiologist said that if the aortic root were to dilate it most likely would happen between 8-13 years of age, which makes sense because that is when they hit their growth spurt. So we will check back in 3 years.
He also has started at a new preschool because we moved in to a different school district, and due to ECSE rules we can not bring him to an out-of-district school. I was pretty upset about that one. I loved his last school and teachers and thought they had a great program. I was really worried that he would be expecting to see the same faces and the same building from last year and was going to be totally confused and scared by the change.
He was a little unsure his first day, but when i picked him up he had a big smile and when I asked if he had fun he said "yeah!" His teacher is very nice and has 22 years of experience, plus her background is in speech pathology so her program is very language focused. With his biggest challenge being the speech delay i think this will be a huge benefit for him. Also the co-teacher specializes in ASD (autism spectrum disorders); a large percentage of ptls kids end up somewhere on the autism spectrum, so if this is the case for Blake we will have someone with him daily who is very knowledgeable in that area, too.
The Jenison school district has a reputation for their great special education program, and i have heard nothing but good things so i hope that it will work out...I still wish we could have kept him at his old school but I guess all that matters is that he is happy and getting whatever help he needs.
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