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Blakie finally has a diagnosis. After a year and a half of tests and being misdiagnosed with Cerebral Palsy, genetic testing confirms he has a rare syndrome called Potocki-Lupski, or PTLS. There is very little known about this condition. So what now? Where do we go from here? And what will Blake's life be like with PTLS?
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For information about Potocki-Lupski syndrome
About Me
- Katey Berry
- I am a 31 year old mom/stepmom to 6 (yes, 6!)beautiful children. I plan to someday soon return to school and pursue my degree in nursing.
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